(Not) Home for Christmas
[NB: check the byline, thanks. /~Rayne]
For the first time since he was in the service in the 1950s, my father may not be home for Christmas.
He was admitted to the hospital last week after experiencing complications related to chemotherapy. While his doctors are trying to work out a way to continue to treat him and release him, it’s likely he won’t be discharged on or before Christmas Day.
It’s difficult to feel hopeful right now; I know my dad is aware of the odds because he reminded me of the statistics for pancreatic cancer when I last spoke with him.
He’s done well up to now, more than two years since his diagnosis. The original cancer was knocked out by radiation therapy. The first round of chemo also worked well. But this cancer is stubborn and his numbers didn’t look good after a blood test earlier this year, so back into chemo he went.
But now it’s the chemo damaging him more than the cancer. I won’t go into specifics but the reason he’s in the hospital now isn’t because of the cancer but because of the therapy.
There’s no other effective alternate therapy, either.
The cost is staggering, too. I don’t know how much Medicare and his insurance are covering, but at tens of thousands of dollar per infusion, chemo is going to eat his life savings. The odds of survival for pancreatic cancer are poor but some of the odds are certainly shaped by patients’ financial ability to fight the disease.
We went through this last year when my father-in-law died after a five-year battle with a different cancer. He was left nearly bankrupt. In his case there were two immunotherapies employed over five years, and they were effective just as long as his oncologist said they would be, almost to the month. He died of congestive heart failure which may or may not have been caused by his cancer since his other siblings also died of congestive heart failure in the absence of cancer.
My father-in-law only had to fight the cancer and his genetics.
My dad, however, has to deal with betrayal on top of cancer.
When I spoke with my dad we also discussed therapies – there aren’t any, really, just the radiation and chemo he’s had to date. If there were effective immunotherapies we would have explored them but there aren’t any. Nor will an mRNA vaccine for pancreatic cancer arrive soon to help my dad’s immune system fight the cancer on its own.
There won’t be any soon under the Trump administration with Robert F. Kennedy Jr. helming Health and Human Services. All cancer research has been affected but cancers without immunotherapies or other effective alternatives to radiation and chemotherapy are those most in need of mRNA vaccine research.
RFK Jr. has assured disruption to all, and discouraged researchers so much that many have left the U.S. to continue work abroad. The cuts to federal funding will suppress investment by other parties. The damage to the U.S. as a center for cancer and vaccine research will last long beyond Trump’s term in office.
It will last beyond my dad’s likely lifetime which will not receive the benefit of research in progress but throttled under Trump and RFK Jr.
It has to be utterly gutting to my dad who’s been a lifelong Republican voter to know the party to which he has been so loyal has been savaging public health at a time when he is most vulnerable and needs it the most — a betrayal unto death. Though we’ve discussed them before I haven’t and won’t ask him about the GOP or Trump because my dad doesn’t need the additional aggravation.
But Dad did touch on RFK Jr., condemning him in his tersest fashion.
My dad doesn’t swear often. Very rarely, usually when he’s injured himself or something has broken during a repair he might muster a muttered “Damn!” or “Shit.” I am so not like my dad.
I do not ever recall him dropping an F-bomb. Again, I am so not like my dad.
My dad could be the image used in the meme of the Asian father – the stern face demanding more of progeny. He asked a lot of us, but then to not ask a lot would have been a failure on his part. He came from humble origins; he was dirt poor, the first in his family to go to college. He chose from one of two universities based on the entrance fee he could afford. Dad managed to earn a bachelor’s and master’s degree in engineering and raise a family, each of whom went to college. His experience assured him that we were wholly capable of reaching his expectations.

With this lifelong experience I didn’t expect to hear my dad swear about RFK Jr.’s gross mismanagement of HHS.
Instead my dad tsk-tsked and called RFK Jr. incompetent.
I wish I could convey the sensation of a mic drop at this point. In my dad’s view, to be incompetent is utter failure. Incompetency means one should be immediately replaced by someone with competency, because one doesn’t acquire competency overnight.
Again, I didn’t discuss Trump or the GOP with my dad but the incompetency doesn’t stop with RFK Jr.
It’s a mark of failure on every legislator who voted to approve RFK Jr. as Secretary of HHS in spite of his history of anti-vaccine propaganda and his lack of medical education. It’s a mark of failure on Trump for his nomination of RFK Jr., catering to the crunchy mom faction and the conditioned MAGA base, along satisfying the driver behind Russian influence operations which fed the anti-vaccine/anti-mask/anti-science faction.
Americans are going to die – some have already died – because of RFK Jr.’s incompetency. Some are becoming disabled and will become disabled because his incompetency doesn’t stop at throttling cancer and vaccine research, but undermining vaccine protocols and public health messaging.
The explosion of measles and whooping cough cases, both of which had been managed by vaccines, will lead to greater numbers of disabled Americans. Measles has already killed at least three this year.
But vaccination numbers have dropped and continue to drop because the incompetent running HHS believes vaccines are somehow less safe than the diseases they prevent.
This same incompetent worm-eaten wackjob, approved by GOP legislators after nomination by a GOP president, has now ensured hope for immunotherapy and vaccines for disease like pancreatic cancer are throttled for at least the next three years.
Unless somehow GOP members of Congress catch a clue and realize national security includes the current and future health of this country, and investing in it with federal funding is essential, unless they catch a clue that a president with obvious age-related cognitive deficits is not the leader they should follow to assure the nation’s safety.
Unfortunately I won’t bet on this awakening during my father’s now-foreshortened lifetime.
__________
You can help Congress catch a fucking clue; call your members of Congress at (202) 224-3121 and demand they impeach RFK Jr. for incompetency. 5Calls.org also has a petition you can use to demand RFK Jr.’s impeachment.
Members of Congress are back in their state and district for the holiday break. You could also call the closest local office and find out if and when they are making public appearances at which you can demand they support impeaching the incompetent RFK Jr.





I started writing this piece yesterday after I learned my dad might not be home for Christmas.
Of course today we learned former GOP senator Ben Sasse has Stage 4 pancreatic cancer. I feel for him and his family, knowing this holiday season will be difficult for them.
The GOP could honor him by impeaching RFK Jr. as soon as this holiday break is over.
*** UPDATE 8:45 PM ET ***
Dad’s doctors and the hospital pulled off a Christmas miracle for us. They’ve discharged Dad so he can be at home for the holiday. He’s not fully out of the woods, still needs oxygen but he’s mobile with a walker. This will be a new challenge but it is what it is and he’s going to sleep tonight in his own home.
Thanks for all your kind wishes; perhaps your good vibes were the energy needed to make this happen. Keep the energy flowing in the right direction by calling your congresspersons and asking them to impeach RFK Jr.
Guessing Ben Sasse has better insurance and, likely, doctors, than your Dad. You have my sympathy, Rayne. My brother-in-law is in hospice with a recurrent cancer that has weakened him to the point chemo would kill him. He and your father obviously didn’t do enough fish oil or ivermectin?
Talking back to myself: I let my anger at the current situation and its effectors overtake decency. As I said, you have my sympathy, Rayne. As well, my sympathy and best (as can be hoped) wishes for your father and family. I’ve lost some friends to pancreatic cancer and it’s not fun. My sorrows are for those left behind, with the loss of a loved one. Your father, I believe, will find the peace beyond understanding as he returns to from where he came. Play him a tune if you can.
Sasse may have better insurance but Stage 4 is the great equilizer — no one with more or less advanced stages will get out easily if at all when there’s no effective immunotherapy and no vaccine for pancreatic cancer, and unlikely to be any soon thanks to that hack RFK Jr.
Dad probably did eat enough fish oil; he’s taken up making futomaki/kimbap every week and as child growing up in Hawaii, fish was pretty much all he ate besides vegetables and rice. His family members supported themselves with subsistence fishing. He didn’t do ivermectin, though. I’m sure some MAGA will fault him for that lack of faith in snake oil horse paste.
Add pancreatic cancer to the two diseases that killed my parents — glioblastoma and Parkinson’s — for which scientists were chasing mRNA therapies until RFK came along.
Reply to emptywheel
December 24, 2025 at 6:58 am
Up to now, research has been so close on glioblastoma; it took the life of a family friend this year, and my sister-in-law’s father some years back. My mom has Parkinsonism with her form of dementia; it’s possible research into Parkinson’s could develop therapy to help her.
But now it won’t come in time for her thanks to RFK Jr.; she likely doesn’t have three years left let alone the amount of time the US would need to restore its research efforts.
reply to EW and Rayne:
Thank you for bringing Parkinson’s to the conversation. I was diagnosed with Early PD two decades ago. Mine has progressed in an atypical, uneven fashion. With that 20-year diagnosis anniversary coming up, I can no longer write by hand and typing is frustratingly glitchy.
This administration believes that “the private sector” should–and will–take responsibility for solving intractable diseases. That only works, sort of, when a billionaire’s loved one gets the diagnosis and said billionaire can strong-arm his billionaire friends into plowing their money into the cause. But that never makes up for the medical infrastructure needed to tackle things like pernicious cancers or degenerative movement disorders. But that’s what they say will save us.
I don’t expect a cure in my lifetime, which will be shortened by many things they do. I had hope for the kind of momentum that might save those catching an EPD diagnosis now, but Trump and RFKJ have made me abandon that hope…at least for now.
Every single time I read, or hear of, a story like this my heart breaks and my blood boils. There is tragedy here, on the individual and collective scale, and our society, in the form of Trumpism, turns its back on humanity. Just recently I rode a bus from DC to NYC with a laid off NIH scientist: she told me it would take at least 10 years to rebuild the cell lines/cultures she was working on, and they were destroyed. Bhattacharya was out Monday making excuses for the ‘reform’ at NIH; truly repugnant. Having accompanied too many down this road (GBM, lung cancer, pancreatic, liver, kidney…) I sympathize with Rayne, and so many others as they carry the cross of this very human burden.
I am so sorry you must deal with the anger on top of the pain and sorrow.
I lost my best friend to billiary cancer. The irony was that my spouse had cancer at the same time. I took care of them both. Only one survivied. Two different Healthcare companies provided wildly differnet care. Cancer sucks all on its own, but I think being educated at the same time on how unbelievably corrupt the American Healthcare system is, was harder than dealing with the cancer at times.
Watching these clowns muck it up even more, on purpose is infuriating.
Thank you for focusing your fire with your work. I appreciate all the work that you do and it inspires me to get up and move and use the outrage into something good.
Great news, Rayne!
Peace be with you and yours, Rayne.
Thanks. We’ll do the best we can with the time and resources we have. That’s all we can do, and we’ll make peace with it.
Ah, geez, Rayne – so sad to hear this. I don’t do “thoughts and prayers”, so just wishing you all well.
Appreciate the well wishes. I’m saving my ‘thoughts and prayers’ for the day RFK Jr. loses his job.
Roger that!
Rayne,
I am sorry. I hereby promise I will call that number and request RFK’s impeachment.
“I am so not like my dad.” Made me laugh. Nicely done.
My kids would argue I’m somewhat like my dad in that I’m a tiger mother who in turn has raised more future tiger parents. After I told the kids this spring I had dropped from the President’s List to VP’s List at school:

At least they lambaste me with memes and gifs and not stern-faced clucks. LOL
Thanks for promising to call your rep and senators. RFK Jr. must go.
Holding you and your dad in the Light. Thank you for sharing his story and the screenshot of those great messages from your family. “Banging the gong of disappointment and dishonor…” – I may have to borrow that one.
I’d like to see a virus named after RFK. The flu variant that’s going around is “subclade K” so that may have to do for now.
My little brother, 62, died of pancreatic cancer this past May. There was only a few weeks between the diagnosis and his passing and he did not get any treatment other than blood thinners, a stroke was the immediate cause of death. My Trump worshiping mother, 95, blames the COVID vaccine.
Ugh. I hate how badly so many family members have been brainwashed.
I’m very sorry for your loss. My younger brother died of a stroke in August 2020 — I feel your pain.
Rayne, I am sorry for your loss. Your father is a wonderful man. I fear these ghouls will kill many more wonderful Americans.
Thanks. I wish I could share more about the unique character he is but I don’t want to violate his privacy any more than I have. But all of us have family members we esteem and none of us should have to fear their illness or death because the HHS Secretary is a conspiracy theorizing hack.
Your dad sounds like a person of great character. We need ordinary, extraordinary people like him to look to in these times. I am glad you have him to admire, to share, to love.
Dad’s not a saint; being a conservative he’s held some values we have never been able to see eye to eye on. His position on gays has long bothered me, and yet at the same time he was generous to a fault with his time helping “the girls” who lived next door for years.
I’ll spend a long time trying to suss that into the future. I guess he’s exemplified how one is supposed hold a personal opinion but render service to other humans as his Catholicism demands. And yes, that’s why it’s been gift to have him as my father, and I wish more people had someone like him to both provoke them into greater things and laugh with along the way.
Beautiful and powerfully written.
I am at this moment recovering from cancer surgery (which was at Lemmen Holton) but I am not going to step on your piece by saying more other than that everything is going well for me.
But the one burning coal of anger that I have had throughout my treatement is that EVERYONE DESERVES THIS TREATMENT. The multiple ways we gate health care behind money is insane, it is evil, and I don’t know what I am going to do about it when I am well, but by god I am going to do SOMETHING.
I wish you rapid recovery from surgery and hope your health continues to improve going forward.
I’ll share that a friend lost another friend this past week to cancer last week; I suspect they died because they couldn’t afford more aggressive therapy. What a damned shame such a lovely person who was kind and generous couldn’t be with us longer because our national priorities are controlled by fascists.
I look forward to hearing what you’re going to do when you’re well enough to fight back. :-)
I am so sorry to read about your dad, Rayne. I recently lost one of my oldest and dearest friends to a “rare and aggressive” cancer she fought unbelievably bravely for ten years (people rarely survive it more than three), going through multiple hideous rounds of chemo. What we didn’t realize for a long time was that the “cancer center” was making a carload of money every time she went in for an infusion. I wouldn’t be surprised if RFK Jr.’s destruction of so much research isn’t related to the enormous profits “health care” companies make from long-term cancer patients and whatever monetary gratitude they may express to our criminal administration.
My dad said it cost $28K each time he had an infusion. That’s a lot of reasons not to develop effective therapies.
It also assures our healthcare system remains overloaded.
Rayne – thank you for your thoughtful post and I wish you and your family strength. We all live in limited lifetimes, let’s try to make the best of what we have.
Ms. Dalloway – you touch on a very important point. The mercenary aspect of keeping patients alive and getting as much of their assets (or insurance money) as possible. This, of course, also happens in our “system” of care for the elderly (nursing homes, LTC, and now even hospice.)
And now the labs and infusion centers are owned by vulture capitalists and sometimes by doctors that prescribe their services.
Rayne, I’m astonished in retrospect at how consistently excellent your many contributions here have remained, while you and your family are facing this difficult time. Our culture imposes expectations of “cheer” and “family togetherness” over the holidays that mere humans struggle to live up to. A crisis of any kind, like yours, strains against the hyped imagery and the repetition of “seasons greetings.” The contrast can make getting through times like this that much harder. You are in my prayers.
As I read your post about the human cost of this administration’s “incompetence,” I couldn’t help remembering the actual malevolence that undergirds so much of the damage–specifically in the case of those thousands of children who are dying now because Elon Musk took his chainsaw to USAID. I will never unsee their desperately thin arms and legs, or their eyes with the opacity that creeps in when hope has been extinguished. No American should unsee those kids.
Trump and his reckless crew are killing all over the world. The betrayal is occurring on a scale unmatched in this country’s history. Those seeking parallels must need look to monsters.
Thanks, Ginevra. I grew up with different expectations of family togetherness because my mom was a nurse. She wouldn’t be around on either Thanksgiving or Christmas, and she could be working a double shift if the situation demanded it. Babies don’t care if it’s Christmas, they come when they come; accidents happen over the river and through the woods no matter the day. But my dad was always home with us. Didn’t think anything of it as kids because it was simply normal to fret about Dad cooking something weird on those days, which is one reason I learned to cook at an early age. We just acquired the skills to roll with it, whatever it was — including mitigating the funky weirdness Dad brought to the kitchen. We make the best of it.
Yes, hic sunt dracones. We are all needed to protect each other from their monstrous claws and horrific bite and the unmapped terrain ahead.
Nurses are saints! I had surgery in 2022 that required overnight stay in hospital. All were sweet and caring and I felt totally cared for. I went back a few days later to thank them but unfortunately covid restrictions would not allow me to visit the floor so I sent a thank you card.
Courtesy of my RN son: give a good box of See’s chocolates. It has to be See’s.
Like so many now, I have a sentimental attachment to dragons. The Trump administration is purely human in the worst sense, out to get all they can for themselves, whether it be money, power, or bloodshed.
Rayne, thank you for this post. It is so meaningful and gets to the heart of Christmas: helping others and holding gratitude for those who do. I second Ginerva’s acknowledgement of ALL your presence here at emptywheel in the midst of such serious on-going illness. A life of service. You help us all.
Peace to you and yours, Rayne.
I’ve been dealing with two families who lost their elders in the last few weeks – one was (relatively) expected, and the other quite sudden. Regardless of whether folks saw it coming or not, it still hurts.
And RFK Jr. isn’t helping – he’s actively making it worse.
Your description of your Asian dad fits the white Kansas rural folk, especially the emotional impact of the word “failure” for them. Both of these families here strike me as relatively Republican, though until recently we never talked politics. I’m fairly public with my politics (“When Jesus said ‘love your neighbor,’ he meant what he was saying. When Jesus said God loves everyone, he didn’t put any qualifiers on it. When God told Moses to care of the immigrant and refugee, God reminded Moses that the people of Israel were immigrants and refugees at one point themselves.”), but these families were reserved.
Until they got to dealing with the medical system and HHS under RFK, Jr.
Suddenly I was hearing a lot about rural hospitals getting shut down thanks to DOGE, the NIH and CDC being gutted, basic accepted medical research like vaccines being questioned, and so much more that would end up killing people unnecessarily.
Make the calls, people. Find your local rep’s office, and stop in to chat in person. Even if the rep is not in, the staffer will make a note about someone making the effort to come in and want to talk. Be polite, think out ahead of time what 1 or 2 points you want to make, and strategize about how to make those points.
Calls and visits make a difference. If your rep is a Democrat, it will strengthen their spine and give them more to think about and use when they go up against their GOP counterparts in public hearings and private conversations. If your rep is a Republican, it will make them nervous and (perhaps) help them rethink their apparently mindless and unquestioning support for Trump and his Minions.
Calls and visits make them think, especially in these difficult times. It’s up to us to make them think as hard and as often as possible.
Thanks, Peterr. Sorry to hear your congregants are suffering through losses but glad that you’re there for them.
Thanks, too, for the call to action. The stakes are too high not to make the effort — literally what is an existential threat for many Americans.
Even here is DC, care is being delayed (or denied). Losing many, many specialists (especially cardiology, neurology, renal) b/c their partners were fired at NIH, CDC, FDA, etc. They have relocated away. My cardiologist’s practice is down to 4 specialists from 8, including electrophysiologists. Impossible to get an appointment in less than one year. Real estate housing prices down 20% in DC itself.
Oh Rayne, I’m sorry. I want to send you patience and peace but that seems presumptuous because you are always the well researched, brilliantly spoken, inspirational rock here. I hope your family can draw together and find solace and grace in each others presence.
Karma needs a bit of a nudge, so I will be dialing for the downfall of RFK Jr.
Karma needs to be a righteous bitch right now. Give her a serious poke with a call. Thanks!
Karma needs a swift kick in the ass right now in my opinion!
I know that’s not how it works but it’s about enough already!
Peace and Love on you and yours’ Rayne and everyone!
Good line, Molly. “dialing for the downfall of RFK” Me too.
Beautifully written Rayne. I am sure your dad knows how smart and passionately engaged you are and that must make him proud.
sksksksksk My dad, proud of me? Hard to tell with that Asian dad face. At least he’s not tsk-ing me, that’s a good sign.
Damn it, I forgot to tell the kids not to tell their grandfather I got an A- and dropped from the President’s List. *Insert Asian dad meme: You’re A-sian, not a B-sian. Get As.*
Ha ha ha. What a good line! sounds like my spouse’s dad — he was nisei (son of truck potato farmers in Colorado).
Best wishes to your father, you and your family
Thanks, xyxyxyxy, much appreciated.
Make the calls to your Congress critters if you can, thanks again.
Sending wishes for the best for you and your father, and remembering just how much it can hurt to lose a parent.
(Or a grandparent I’ve always missed my father’s parents, even though neither was young when they died.)
My opinion of RFKjr (and his associates at HHS) can’t be printed without the paper burning or the screen smoking.
Funny enough, I was thinking of my grandfather yesterday. He died nearly 40 years ago now and I still miss him.
I await the smell of smoke; my only question is whether writing a 5Calls petition produces white smoke or black smoke?
dear rayne
thank you for writing this piece.
we are all learning that the bumps in the road ARE the road.
however, the criminality (of the present administration and corporate america’s greed) make it so much more cruel and painful.
irony of ironies: that while advocating for the “Danish vaccine schedule ,” there is no corresponding advocacy for the basic amenities of Danish life that underpin that vaccine schedule.
The bump in the road which should be removed: RFK Jr.
Nobody needs that bump on our payroll.
RE: Danish vaccine schedule — it’s like RFK Jr. is utterly clueless about the differences between Denmark and the largest economy in the world, like a worm ate that part of his logic.
Holding you and your dad in the Light. Thank you for sharing his story and the screenshot of those great messages from your family. “Banging the gong of disappointment & dishonor…” – I may have to borrow that one.
That child…there was more in that text exchange about an actual gong my eldest child has in their living room. They will seriously beat that gong of disappointment and dishonor the next time we convene at the eldest’s residence.
Not the first time I have asked what the hell I did as a tiger mom.
As I remind my Chinese-descent SIL:
Tiger moms raise “TIGERS” not PANDAS.
Not everyone wants to be a tiger – some of them want to be a panda!
FWIW
That’s really not how it works; these two tigers came from a tiger. I wish I could share my youngest’s photo taken by the hospital — they’re stern-faced fists up, ready to fight their way into the world. The elder looks so sweet and yet intensely curious in their first photo; same infant freaked out my MIL when hours-old Baby-1 lifted their head to look more closely at grandma.
They were tigers from birth.
It’s especially hard to face serious illness of loved ones during holidays. I’m sorry to hear about your Dad, Rayne. I admire all the things you have shared with us about your family. To me it represents the hopes and dreams of America.
My earliest Christmas memory of my father is of him being so angry that he picked up the fully decorated tree and threw it across the room. In many ways he was very much like Trump, including all the lying.
My mother lived 40 years longer than him. She entered the hospital on a Christmas Eve and passed a few days later at the age of 95. I was fortunate enough to have had time before that to make a PowerPoint presentation, with music, on my laptop that had various artwork she had done over the years, plus many family photos.
I also had a book produced from that which she carried around for weeks. She told everyone it was her biography. The last coherent thing she said to me was, “The chickens have flown the coop.”
She’s been gone more than a decade, but I still miss her. That’s not to say we didn’t have our differences. When I was young I got so mad at her that I moved 2,500 away and didn’t talk with her for months. But we eventually made amends.
I’ve shared this poem before. It was inspired by my mother but is fictional, to represent something shared and more general:
Ways and Means
You don’t like the applesauce,
I don’t like the beans,
I say it’s a double-cross,
You say ways and means.
We pass by Pampers on the shelf,
Today it’s “all Depends,”
Present, past and future self
now greets its dividends.
We’ve seen a host of wonders,
Mystery still abounds,
We’ve made a few big blunders,
Yet we’d like a few more rounds.
Telomeres will reach their end,
Our cells won’t subdivide,
The rosy days of “on the mend”
are on the downhill slide.
They say the hardest thing in life
is letting go, but then
music from the piper’s fife
cajoles us home again.
It’s alpha and omega:
From beginning to the end
round hole, square peg with
memory our bookends.
With memory our book ends.
Much appreciate your sharing Ways and Means in this thread. Reflects the kind of head butting my dad and I have done over the years.
Always glad to see you here, SL.
Thanks, SL!
All the best to you and yours’!
OMG, I wish I could have written a poem like this–ever, but especially before my mom died eight years ago. She would have loved it, albeit after sharing some criticism of the kind she always felt I could use.
“…bookends…book ends” stunned me. Literally (a word I use rarely) stunned me.
Thank you for sharing and best wishes to your family.
Thanks, Flatlander, nice of you to drop in. Have a good holiday with your friends and loved ones.
I’m so sorry you’re going through this. Peace to you and yours.
Appreciate the sentiment, Troutwaxer. Wish you and yours a safe and happy holiday season.
Thanks for your sharing. And, for all of what you do.
Thanks, Bill, nice to see you in comments.
I can’t really do religious sentiments anymore, but hope that your father can take pleasure with his time shared with family and friends, and they with him. I am currently similarly situated with a friend and my father, and know how rough it can be.
This year we made a concerted effort to ensure my dad got a trip to the UP and had a chance to watch a pro golf tournament. I’m glad we’ve been able to share these with him before things became so limiting. I hope you are also able to share some unique and pleasurable experiences with your friend and your father — the memories will be so good in the days ahead. Wishing you and yours the best possible outcomes.
Rayne, I was missing your byline. Now I understand. Sad for you. Lost my husband to cancer a few years ago. Cherish these days you have. Best wishes.
Thanks for dropping by, Honeybee. I’m sorry for your loss; it’s a great equalizer that we will all come to know the value of our relationships through a common pain.
I send along my condolences as well, wish your family the best and that your father beats this. I had two colleagues pass from pancreatic cancer, and both found out at Stage 4 because it’s apparently not particularly symptomatic until then.
Part of the many fundamental problems with RFK Jr is that he’s a eugenics guy, meaning he’s just fine with ‘weeding out the weak’ as he sees it to improve the overall health (as long as it’s somebody else paying the price).
We were very lucky my dad has always had a sensitive digestive system; he knew things weren’t quite right pretty quickly, and my sister learned before the rest of us when she noticed my dad’s AirTag was at the ER on a Sunday morning instead of at Mass (she’s AirTagged him and mom because of mom’s dementia). He had pain he thought was gall bladder related and ended up with a diagnosis that week. I’m sorry your colleagues didn’t get earlier warning about their cancer.
As for RFK Jr.’s eugenics: it’s not just him but the entire Trump administration’s eugenics and RFK Jr.’s effecting one “solution” from HHS. Eugenics are racist as fuck because the persons who have least access are also less likely to be white. Their eugenics is also misogynist as their policies on reproductive health disproportionately affect women. It’s a slow form of genocide and femicide but it’s still death. RFK Jr. needs to go.
Yes, Rayne, that’s it: genocide and femicide. absolutely.
Hi Rayne,
Sorry to hear of your dad’s illness.
Between RFK Jr and Miller, MAGA has a de-facto plan to depopulate the country. Miller decides who’s fit to stay and Jr decides who’s fit to live with “survival of the wealthiest” by kneecapping prudent public health measures and compassionate access to quality health care.
We suffered 800K excess COVID deaths due to trump ’45 idiocy and the goal seems to top that in trump ’47. At least the blue states are fashioning a stop gap medical care safety net. (Maybe there will be medical tourism from red to blue states!)
That’s another goal blue state folks could work on in the coming year — find out their state’s status regarding a blue state healthcare compact, and plug into activism related to that project where possible.
Red state blue voters should also look to the closest blue states and develop approaches for aiding others to reach more accessible blue state healthcare as it develops,
Hi Rayne, wishing you my condolences, my deep thanks for your many dispatches here, and my best wishes for your dad for as easy a time of it as possible. After reading this entire thread, I cranked up “5 Calls” (never used it before) and left “Impeach” messages with my electeds. We really are going to have to take care of each other as best we can, and that seems like a good way to make a start. Take care, Rayne, and thanks again.
(drat, missed the edit window. I meant to say, I called & left “IMPEACH RFK” messages…short & sweet.)
[Moderator’s note: no idea why this went into the spam bin but I freed it — and thanks for calling. /~Rayne]
I’m sorry to hear about your father–I do do thoughts and prayers, and your family has mine.
Even outside the US there’s crazy anti-vaxxers. Here in Alberta (Canada), even before COVID I was fighting my ex and my daughter’s school over her getting the HPV vaccine. She went to a Catholic school, and our (corrupt) Bishop decided giving girls the HPV vaccine would make them promiscuous. My daughter was 13 at the time. I forced the issue (we had a sane provincial government at the time so the school, being publicly funded HAD to provide for students getting vaccinated if they wanted to). My dad had throat cancer, caused by HPV, and was fighting it at the time (he’s been cancer free since) so I wasn’t going to take the risk with my kid’s future over science. I’m a twice-a-year-Catholic (Christmas and Easter) and I believe faith and science can co-exist.
The saddest part of the story is one of my daughter’s friends in school was recently diagnosed with cervical cancer. She’s 23. Her parents refused to give her the vaccine. I can only shake my head and pray she gets better–and people maybe take some lesson away from this. But this is Alberta, and the right-wing and religious steadfastly refuse to learn lessons.
With my daughter in the Navy, I’m retiring to the East Coast in a few more years. Back to where politics and culture wars are less of a daily house-on-fire event than in this province.
Sean
Glad you could drop by, Sean. Do what you can to beat back the anti-vaxx/anti-mask/anti-science movement in Canada so that it doesn’t get out of hand as it has here in the US.
Best wishes to you, neighbor.
I feel for you, Rayne. My dad died from cancer and cancer has been the plague of our family tree. A pox on the bootlickers of the GOP.
Cancer in a family tree => cancer + genetics research => RFK Jr. throttling.
Thanks for coming by, OldTulsaDude, and do make the calls to your congress critters for the benefit of rest of your living family tree.
RFK Jr.’s idiocies painfully contribute to further debilitating the USA, by further bollixing a medical-industrial complex, already more than sufficiently parasitic, avaricious and unhelpful (thank you, Richard Nixon, in retrospect a much smaller potato than the current corruption, but still a crook, for enabling health insurance providers to immorally prioritize stockholders at the expense of patients). Putin is doing his best to realize Stalin’s wet dream of a West made impotent by its own hand, and RFK Jr. is but another useful idiot among the coprophagic flock of flies buzzing around the current occupant of the White House, whose loyalty is obviously not to upholding the U.S. Constitution. Dante will need to add another circle to Hell just for that fetid bloviant and his slithering minions.
Now that’s a rant. Not every day one gets to read a healthy screed accurately labeling the White House’s parasites. “Coprophagic flock of flies” indeed.
Best to you and yours.
Thank you, and the same to you and yours.
That’s a most excellent rant, and I say that as someone who used to preach the world of “Bob” with the Church of the SubGenius.
Rayne,
Wishing your family peace this holiday season. Thank you for sharing about your father – he sounds like a good man. Cancer sucks.
Thanks much, Daybird, appreciate your visit and your kind wishes. Drop by again soon.
As little pain as possible for you and your family.
I had friends who died from pancreatic cancer and glioblastoma. They are scourges without mercy and we should have no mercy on them.
#te
You would think we would invest heavily in research at the intersection of cancers like glioblastoma and pancreatic cancer, let alone in the invididual cancers themselves.
But as you know we are led by fascist crooks. *sigh* I just don’t understand their way of thinking.
They all either think it’s “God’s plan” to improve us through suffering, or punishment for something we did, or didn’t do.
They don’t believe in chance and accident.
I’m sorry to learn of your dad’s & family’s situation this Holiday season, Rayne. Wishing you all the best.
My family lost our patriarch to lung cancer in 1990, and it doesn’t really seem there has been much advancement since then—dad also got the expensive chemotherapy, which unfortunately only seemed to make him sicker.
Happy Holidays to all at EW!
There’s a father-shaped hole that remains, never really gets filled after they pass. This is our second Christmas without my FIL and it only now feels like the blackhole has lessened its pull a bit on our family.
Thanks for stopping in and happy holidays to you and yours as well.
Rayne, while in Seattle for about two years as the caring person for a victim of triple negative breast cancer, the worse variant, ultimately I lost Christy, who had been a part of a Friday night group where now with Christy dead, the group before I returned to Minnesota was made up of five, each having lost a spouse or spousal person to different forms of cancer. I can relate. It’s hard. The state of the art approved generally for treatment of triple negative was an antibody-chemo composite molecule where the chemo only activiated after the antibody attached selectively to a cancer cell and then released the toxin. The whole body suffered less due to the targeting, and I believe this research line is still active and looking at a range of cancers. Not government funded now, but kept ongoing by pharma ventures chasing profit, for now.
That said, a general warning – There is a “De Vos Center for Human Flourishing” hitman out to get healthcare worsened beyond Kennedy, but including Kennedy, see, tweet: https://x.com/DrJayRichards/status/1854146318341431598/ — The guy has a wiki page.
That De Vos thing is a splinter attachment to Heritage Foundation, and the hitman-tweeter is not as incomptent and ignorant as Kennedy, but likely knows better while propagandizing an upcoming Heritage hit-agenda: https://www.heritage.org/restoring-american-wellness
These are dangerous provocateurs, and stealthier than Kennedy. There are snakes, and then there’s Kennedy as a dangerous deranged rhinoceros running pell-mell, blind and with rabies.
Snakes may ultimately cause worse outcomes, long term.
There are some treatments for triple-negative breast cancer, but it’s still no picnic. The person I know of who survived it had the nasty side effect of losing cortisol production…but they’re still alive and otherwise well.
Cortisol replacements exist; life replacements don’t, at least so far. In the wake of a pituitary tumor and consequent surgery I’ve had to take many replacement hormones, but I’d take that over the original disease any day. I hope your friend feels similarly, PJ. I don’t know their situation, but I hope they would rather be alive.
They seem to be doing well. They write books, so we can see those coming.
Very familiar with the miserable wretches named DeVos. The family has been one of the largest donors for decades to the GOP and a major force behind the Mackinac Center for Public Policy located in my backyard here in Michigan. MCPP has undermined workers’ right and attacked efforts to develop single-payer publicly-funded healthcare by savaging unions before they can organize behind a Medicare-for-all system.
The concept of the Overton Window? Developed by DeVos-funded MCPP.
Wasn’t the Mackinac Center involved with an adoption grift? placing babies separated from their immigrant parents for adoption?
I read yesterday that Trump has said he’s building monuments to himself because he knows that no one else will. Any monuments to this era should memorialize those who suffered under the brutish ignorance and cruelty of this administration.
I shudder every time I see a photo of the White House, whether close range perspectives of his gold-painted hall of shitty takes on past presidents, or the wide angle of the now-destroyed east wing.
In essence, the current White House is a model of Trump’s brain. I will be glad for the day the lone and level sands stretch far away from his works about which we now despair.
I’m wishing damnatio memoriae to him, his enablers, his grifting family members, and all his appointees who can’t see the wrongness in anything they’re doing.
Every edifice and project with TFG’s name should be sand blasted, powerwashed, and restored to their pre-TFG state.
But records of his theft and abuses should be fully documented. We probably need some sort of memorial documenting the losses he caused. I’m thinking of the symbolism of the Vietnam memorial which was intended to appear like a cut or a scar in the earth. Some epitaphic monument should be designed to remind us of the damage he and his psychophantic enablers have wrought on our country and the world. The Americans he killed in his first term with his gross neglect handling Hurricane Maria and the pandemic deserve that much, let alone those he’s killing this term.
Memorialize him as President Covid or President Covfefe. If they need a first name, Gilt will do.
Thank God (or rather Shelley) that we have that sonnet, which teaches that even the “grandest” human works mean nothing in that face of death which claims us all. Trump would have done well to have some English teacher pound that sandy poem into his head, but it probably couldn’t be done even when he was young.
“Life is about living, not building enormous monuments to yourself, you moron.” Every day I fantasize about the things I would say to him.
I think the National Trust for HP has submitted FOIA requests for the demolition records of the East Wing. Personally, I think they should name the Blue Plains Sewage Plant in SW DC for Trump.
Rayne thank you for sharing. My mother died of cancer. It was a rough six months. When she passed, she was finally at peace. Important to take care of yourself during this time of uncertainty. Sending good vibrations to you and your family.
P.S. Have called Cassidy’s office many times about health issues stating RFK Jr. needs to resign. Plus give him updates about the measles outbreak around the country. Cassidy had every opportunity to shut RFK Jr. down and did not. Cruelty is the currency of the Republican party.
You have yet another reason to call Cassidy — there was a measles exposure in Denver airport today. Someone flew into and out of Denver, meaning there were at least three planes with measles virus in their air handling system and in the Denver airport concourse.
IMO, if you’re not vaccinated for measles you shouldn’t be permitted to fly. R0 for the disease is simply too high and other immunocompromised passengers and tiny infants can’t consent.
Very sorry for your loss; appreciate your kind words.
Rayne: “But records of his theft and abuses should be fully documented. We probably need some sort of memorial documenting the losses he caused.” I read that and thought of how the people of Ukraine turned Viktor Yanukovych’s palace “Mezhyhirya Residence” into a museum. But what type of memorial would be proper for Trump? His damage to the rule of law, to democracy, to our alliances, our economy, and to decency plus the lives lost through his incompetent appointments and GOP cowardice.
Somewhere in DC there must be (I’m guessing) a little-used but architecturally imposing facility that could be converted into a Palace of Restorative Justice. Hopefully it would be large enough to host several courtrooms simultaneously handling cases on ALL the transgressions, thefts, and brutalities this regime and ALL its henchpeople are on the hook for. Equally important perhaps, it should have a robust and vigorous press/public affairs office issuing daily briefings on the individuals and issues on trial, clarifying the criminality our “legacy media” has been whitewashing so relentlessly. (I’m sure there are six thousand reasons this could never happen, but I’d argue it’s essential, if only to identify and clarify the criminality these monsters have perpetrated, since our lapdog media seems so ho-hum about their obligation to report on it.)
What type of memorial for trump? Absolutely none. Remove his name from all the buildings he named after himself, ships which were named after him. People appointed by him to positions would be fired, no severance, just lists of their fuck ups.
Trump always likes to say what he does is the best, etc. Have a few historical writers pen a book listing all the dumb shit he did and how it impacted the U.S.A. Make it part of the education system: this is what happens when the country elects an idiot might be a good title.
As long as the wealthy have health care, they don’t care about the rest of the population. They don’t see the benefit to the country if everyone is as well as they can be. O.K. lets rephrase that. They don’t see the benefit of ensuring everyone has good health care and housing because it doesn’t improve their bank balance.
A fitting end for some of those Kennedy and trump cheer leaders should be a case of cancer from which they do not recover because they stopped research. (I am not the forgiving type) There actions are costing American their lives.
I am sorry to hear about your Dad. Sounds like he is a good Dad and person. It is great he is going to be home for Christmas
To every one, Merry Christmas!
Earlier Rayne said:
>>> We probably need some sort of memorial documenting the losses he [Trump] caused.
What a great idea.
And thanks so much for sharing. I lost both of my brothers to pancreatic cancer (we think), one at the age of 23 and the other in his early seventies (like me). It was so aggressive that one week they started to feel down and then two weeks later they were gone.
I hope this doesn’t sound cruel but sometimes I think it would be a good way for me (at least) to go. I’m struggling with facing old age and death and hope I can do it with dignity and compassion for others. I don’t want to burden my wife either, although it would be good for my soul if I needed to take care of her.
I’m so sorry for your losses. Losing a brother has been like losing use of a limb; it doesn’t matter at what age it happens, either.
Pancreatic cancer doesn’t allow much dignity but then giving birth doesn’t either. My deeply Catholic aunt (who should have been a nun) always encouraged us to pray for the best possible outcome. May you have the best possible outcome when the time arrives to leave this plane of existence.
Rayne: Thank you for yesterday’s 8:45 PM ET UPDATE in your post regarding your Dad’s doctors and the hospital pulling off a Christmas miracle for you and your family.
Thank you, also, for your reminder to us to “Keep the energy flowing in the right direction by calling your congresspersons and asking them to impeach RFK Jr.” I suggest that we should also consider calling Senator Cassidy, in particular. As a physician, he ultimately was the one person standing between us and the wrong that RFK, Jr. has now wrought. I have called his office on many occasions suggesting that his medical diploma be taken from the wall and ritually burned, as he no longer deserves the title, the accolades, that come with being “a physician, good and kind.”
Christmas is a time for gift-giving, and so we should be reminded that we have long been given a gift, one that we must use while we still can: the gift of voice …
It is loud, it is clear
It’s stronger than your fear
It’s believing you belong
It’s for calling out the wrong
–Alicia Keys, Brandi Carlile – A Beautiful Noise (Official Video).
If Cassidy is not your senator, don’t call him. They don’t pay attention to non-constituents.
You can, however, call his office and ask to leave a message for him as a member of the Senate Finance Subcommittee on Health Care.
You could also call these senators using the same approach:
Todd Young, Indiana, Chair
John Thune, South Dakota
Tim Scott, South Carolina
Bill Cassidy, Louisiana
James Lankford, Oklahoma
John Barrasso, Wyoming
Ron Johnson, Wisconsin
Thom Tillis, North Carolina
Marsha Blackburn, Tennessee
Roger Marshall, Kansas
Are some of these folks likely to listen at all? No — but it’s the number of calls they get that will make the difference. They need to feel the pressure.
Thanks for taking the time and making the effort.
Thanks Rayne for the list.
Bill Cassidy, John Barrasso, and Roger Marshall are medical doctors serving as U.S. Senators. They are ripe for particular shame.
“ … but it’s the number of calls they get that will make the difference. They need to feel the pressure.” Yes:
When you’re all alone, it’s a quiet breeze
But when you band together, it’s a choir
Of thunder and rain
–Alicia Keys, Brandi Carlile – A Beautiful Noise (Official Video).
Our aunt lives alone in another state. She is the last one left of our parents and aunts and uncles. We brought her down for Thanksgiving. We all got to spent time with her eating, talking, playing games, playing music, reminiscing. We all went home at the end of the day and it was just her and my sister talking at the kitchen table. It was at that moment that she died, about an hour after we had left.
We are all shocked and sad…but we can’t think of a better end.
Carpe diem.
Matt, I’m sorry for your loss. I was closer to my own (only) aunt than I was to my parents. I’m sure she would have chosen an end like your aunt’s over the long slide into dementia that belied her amazing life. She knew and didn’t know what was happening to her, more the latter toward the end, but it wasn’t a merciful confusion.
If I am lucky enough to choose, I want your aunt’s story. Blessings to you and your family.
First, my respect to your dad for the life he has lived, and the descendents he raised. I’m thrilled for both you and him by your update that he got to go home for the holidays with his family, and may be able to stay home for a while longer.
Second, you have my empathy.
Third, your dad is too kind. RFK jr isn’t just incompetent, as bad as that is, he is evil and pernicious. He’s killing current research projects, and killing funding for grad students, postdocs, and early career faculty, hollowing out the pool of researchers for if and when medical research funding is increased again. He’s killing people now with his vaccine garbage, but also causing early deaths for many years into the future.
My letters to my Congresscritters and conversations with their staff all use the phrase “as future consumers of health care, …”, in this case that RFK jr is explicitly harming _their_ future care, and should be forced to resign or be impeached for the good of ALL.
A PNAS paper last month reported a form of CAR T (CAR NKT) immunotherapy that works against dense tumor cancers like pancreatic, but also triple negative breast cancer. https://doi.org/10.1073/pnas.2517786122
https://doi.org/10.1186/s13045-025-01736-9 UCLA PR: https://newsroom.ucla.edu/releases/immunotherapy-car-nkt-pancreatic-cancer-ucla That’s not offered as false sliver of hope for you dad; it may or may not be ready when I’m the age my dad was when he died of pancreatic cancer.
What struck me first about the paper was the funding acknowledgements. No NIH or NCI funding! Primary funding was the California Institute for Regenerative Medicine (state government), with some DOD Kidney Cancer funding and UCLA postdoctoral fellowships. My state stepping up funding medical research at state universities, mitigating some of the harm, albeit at a much smaller scale than the cuts at NIH. The other positive is their estimate of $5000 per treatment, and off the shelf for immediate treatment. The first CAR T trials cost ~$5M per patient, because they had to modify the patient’s stem cells to target their specific tumor markers, and they took at least 5 weeks to create the CAR T cells. They’re still several hundred thousand dollars per patient. If this approach (or something similar) pans out, we could easily afford to provide it to all who need it, in time for it to matter.
The next major hurdle is getting FDA (dammit: under RFK jr) approval to begin clinical trials for CAR NKT.
Thanks for sharing that paper and news about its funding. I hate that we have to pin our hopes on smaller amounts of funding from states rather than a larger amount from the feds but I’ll take whatever successes we can get.
Wouldn’t be surprised if this particular research ended up going overseas for clinical trials. I know of one study for a neuro disorder in which subjects have transferred to Canada where trials had been underway in tandem with the the US but funding in the US was cut.
I feel like RFKjr and his buddies in antiscience and quack medicine should get the same level of care that the rest of us get. (If we can’t get it, they shouldn’t be able to.)
If all elected and appointed officials had the same healthcare we have, we’d be closer to single-payer public healthcare for all.
Great to hear you got your Dad home for Christmas. Hope it went well :-)