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(Not) Home for Christmas

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[NB: check the byline, thanks. /~Rayne]

 

For the first time since he was in the service in the 1950s, my father may not be home for Christmas.

He was admitted to the hospital last week after experiencing complications related to chemotherapy. While his doctors are trying to work out a way to continue to treat him and release him, it’s likely he won’t be discharged on or before Christmas Day.

It’s difficult to feel hopeful right now; I know my dad is aware of the odds because he reminded me of the statistics for pancreatic cancer when I last spoke with him.

He’s done well up to now, more than two years since his diagnosis. The original cancer was knocked out by radiation therapy. The first round of chemo also worked well. But this cancer is stubborn and his numbers didn’t look good after a blood test earlier this year, so back into chemo he went.

But now it’s the chemo damaging him more than the cancer. I won’t go into specifics but the reason he’s in the hospital now isn’t because of the cancer but because of the therapy.

There’s no other effective alternate therapy, either.

The cost is staggering, too. I don’t know how much Medicare and his insurance are covering, but at tens of thousands of dollar per infusion, chemo is going to eat his life savings. The odds of survival for pancreatic cancer are poor but some of the odds are certainly shaped by patients’ financial ability to fight the disease.

We went through this last year when my father-in-law died after a five-year battle with a different cancer. He was left nearly bankrupt. In his case there were two immunotherapies employed over five years, and they were effective just as long as his oncologist said they would be, almost to the month. He died of congestive heart failure which may or may not have been caused by his cancer since his other siblings also died of congestive heart failure in the absence of cancer.

My father-in-law only had to fight the cancer and his genetics.

My dad, however, has to deal with betrayal on top of cancer.

When I spoke with my dad we also discussed therapies – there aren’t any, really, just the radiation and chemo he’s had to date. If there were effective immunotherapies we would have explored them but there aren’t any. Nor will an mRNA vaccine for pancreatic cancer arrive soon to help my dad’s immune system fight the cancer on its own.

There won’t be any soon under the Trump administration with Robert F. Kennedy Jr. helming Health and Human Services. All cancer research has been affected but cancers without immunotherapies or other effective alternatives to radiation and chemotherapy are those most in need of mRNA vaccine research.

RFK Jr. has assured disruption to all, and discouraged researchers so much that many have left the U.S. to continue work abroad. The cuts to federal funding will suppress investment by other parties. The damage to the U.S. as a center for cancer and vaccine research will last long beyond Trump’s term in office.

It will last beyond my dad’s likely lifetime which will not receive the benefit of research in progress but throttled under Trump and RFK Jr.

It has to be utterly gutting to my dad who’s been a lifelong Republican voter to know the party to which he has been so loyal has been savaging public health at a time when he is most vulnerable and needs it the most — a betrayal unto death. Though we’ve discussed them before I haven’t and won’t ask him about the GOP or Trump because my dad doesn’t need the additional aggravation.

But Dad did touch on RFK Jr., condemning him in his tersest fashion.

My dad doesn’t swear often. Very rarely, usually when he’s injured himself or something has broken during a repair he might muster a muttered “Damn!” or “Shit.” I am so not like my dad.

I do not ever recall him dropping an F-bomb. Again, I am so not like my dad.

My dad could be the image used in the meme of the Asian father – the stern face demanding more of progeny. He asked a lot of us, but then to not ask a lot would have been a failure on his part. He came from humble origins; he was dirt poor, the first in his family to go to college. He chose from one of two universities based on the entrance fee he could afford. Dad managed to earn a bachelor’s and master’s degree in engineering and raise a family, each of whom went to college. His experience assured him that we were wholly capable of reaching his expectations.

My siblings and I dreaded the look of disappointment and the clucking tsk-tsk upon our perceived failures. Bringing home something less than an A on a report card earned one a grilling over dinner and beyond. No epithets, just many intense questions for which we’d better have a reasonable answer including how we were going to fix the lapse going forward.

With this lifelong experience I didn’t expect to hear my dad swear about RFK Jr.’s gross mismanagement of HHS.

Instead my dad tsk-tsked and called RFK Jr. incompetent.

I wish I could convey the sensation of a mic drop at this point. In my dad’s view, to be incompetent is utter failure. Incompetency means one should be immediately replaced by someone with competency, because one doesn’t acquire competency overnight.

Again, I didn’t discuss Trump or the GOP with my dad but the incompetency doesn’t stop with RFK Jr.

It’s a mark of failure on every legislator who voted to approve RFK Jr. as Secretary of HHS in spite of his history of anti-vaccine propaganda and his lack of medical education. It’s a mark of failure on Trump for his nomination of RFK Jr., catering to the crunchy mom faction and the conditioned MAGA base, along satisfying the driver behind Russian influence operations which fed the anti-vaccine/anti-mask/anti-science faction.

Americans are going to die – some have already died – because of RFK Jr.’s incompetency. Some are becoming disabled and will become disabled because his incompetency doesn’t stop at throttling cancer and vaccine research, but undermining vaccine protocols and public health messaging.

The explosion of measles and whooping cough cases, both of which had been managed by vaccines, will lead to greater numbers of disabled Americans. Measles has already killed at least three this year.

But vaccination numbers have dropped and continue to drop because the incompetent running HHS believes vaccines are somehow less safe than the diseases they prevent.

This same incompetent worm-eaten wackjob, approved by GOP legislators after nomination by a GOP president, has now ensured hope for immunotherapy and vaccines for disease like pancreatic cancer are throttled for at least the next three years.

Unless somehow GOP members of Congress catch a clue and realize national security includes the current and future health of this country, and investing in it with federal funding is essential, unless they catch a clue that a president with obvious age-related cognitive deficits is not the leader they should follow to assure the nation’s safety.

Unfortunately I won’t bet on this awakening during my father’s now-foreshortened lifetime.

__________

You can help Congress catch a fucking clue; call your members of Congress at (202) 224-3121 and demand they impeach RFK Jr. for incompetency. 5Calls.org also has a petition you can use to demand RFK Jr.’s impeachment.

Members of Congress are back in their state and district for the holiday break. You could also call the closest local office and find out if and when they are making public appearances at which you can demand they support impeaching the incompetent RFK Jr.

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Reaching Velocity to Escape Anti-Vax Stupidity

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[NB: check the byline, thanks. /~Rayne]

Before I go any further, here’s a public service announcement:

If you were born between 1960 and 1968 and have not been vaccinated for measles since 1968, go make appointments for a two-shot MMR vaccine regimen.

“Starting in 1963 we started vaccinating,” [CBS News’ Dr. David] Agus said. “The first five years of the vaccine — some batches of it were not very good. None of us really know which batch we got.”

“So you can either go to your doctor and say, ‘Draw a blood test and see if I have a high enough level,’ or just get the shot,” he said. “By the way, it’s a lot cheaper to just get the shot. So people who were vaccinated from 1963 to 1968 — that needs to happen.”

According to Agus, those who were born before 1957 were most likely exposed to measles, meaning 95-98 percent of them have enough antibodies to fight the disease. From 1968 to 1989 doctors gave only one shot, meaning immunity among those people may be a little lower than those who received two shots.

source: CBS News

I’m in that group and I’ve gotten my first shot of the series with the next in a couple weeks. I got mine at the local health department office, easy in and out. If you’re in the age bracket, get it done some place you trust.

~ ~ ~

I wish I could have gotten one at my usual provider – the pharmacy where I’ve gotten all my vaccinations for decades. Unfortunately that’s where things got weird immediately after my recent flu shot.

After getting my flu shot I asked the pharmacist – a new person I’d never see before – if I could get an MMR vaccine because of my age and uncertainty about my level of immunity to measles, if any. I had concerns because I was going to be around persons who were flying to and from Texas and could be exposed to measles during travel.

They told me the pharmacy only gives MMR vaccines to children, that I’d have to have a script from a physician to get one, and a physician might require a titer run first to determine if I needed a booster at all.

Then the pharmacist proceeded to tell me measles was only an Old World problem (what the fuck, I thought), that everyone in the Old World had immunity from exposures (what the actual fuck), and that the outbreak in Texas was from “border crossers” (OH NO MOTHERFUCKER).

I exited that pharmacy as fast as I could. I probably left a vapor trail behind me like the Road Runner.

I felt gross, digusted, like I needed a shower after that wretched dose of stupid.

I wish I’d known what that person really thought before I let them touch me, because I would have left and gone to a different pharmacy.

Having such a close brush with stupidity and racism was revolting. I didn’t dare confront this person in a confined space about their stupid assumptions knowing the measles outbreak was centered in a community of white Christian Texans of the Mennonite faith and not “border crossers” — code for those brown people coming into the US from Central and South America, which is the New World.

You’d think there’d be an institutional safety net protecting us from this wretchedness across the country. Sadly, we’re all of us now exposed to this kind of stupidity thanks to the Trump administration’s appointee helming Health and Human Services, our new chief anti-vaxxer, Robert F. Kennedy Jr.

~ ~ ~

The Food and Drug Administration’s director of the Center for Biologics Evaluation and Research, Dr. Peter Marks, resigned yesterday.

In his letter, which was obtained by The Associated Press, Marks said he was “willing to work” to address the concerns expressed by Robert F. Kennedy Jr. about the safety of vaccinations. But he concluded that wasn’t possible.

“It has become clear that truth and transparency are not desired by the Secretary, but rather he wishes subservient confirmation of his misinformation and lies,” he wrote.

Of course this was RFK Jr’s work, not a resignation but a firing because Marks — a hematologist oncologist who earned a Bachelor of Science degree from Columbia University, followed by a Doctor of Medicine and PhD in cell and molecular biology from New York University — wasn’t willing to roll over and rubber stamp RFK Jr’s bullshit anti-vax nonsense.

And by nonsense I mean the deadly kind – misinformation and disinformation about vaccines directly leading to the deaths of 83 Samoans from measles after being misled by RFK Jr. about measles vaccinations.

That RFK Jr. learned absolutely nothing from these deaths, continuing to spread his well-known, well-documented dispersion of anti-vaxx bullshit, is a shame.

That he has now cost our country the top official in FDA’s vaccine regulatory system while the US is experiencing a spreading measles outbreak, is on the verge of bird flu making a human-to-human leap, and still dealing with the COVID pandemic borders on criminal.

His nonsense is even more toxic in that he not only discourages scheduled vaccinations; RFK Jr. has promoted alternative therapies which are not effective and instead create more health risks.

RFK Jr. – who is not a medical doctor, has no education in science, having a BA in American history and literature, a JD from the University of Virginia School of Law, and a Master of Laws from Pace University — touted vitamin A as a means to treat measles. This vitamin only works to alleviate some measles symptoms in patients who are malnourished; it is not an acceptable therapy.

Unlike water soluable vitamins like B and C which flush out of the body as wasted in urine, vitamin A will bio-accumulate in the body’s fat until the body can use it. An excess of vitamin A can damage the liver. Knowing this you can predict what could happen next: someone takes RFK Jr’s bullshit seriously and poisons themselves or their children thinking they’re doing the right thing for measles.

What do you know but now there are patients with liver problems:

Several patients at Covenant Children’s Hospital in Lubbock have been found to have abnormal liver function, CNN reported, which can occur when a person takes excessive doses of vitamin A. Those being treated include “a handful of unvaccinated children who were given so much vitamin A that they had signs of liver damage,” the New York Times reported.

This is exactly the kind of crap which cost the lives of mostly infants in Samoa. Well-meaning parents took RFK Jr’s idiocy seriously and didn’t seek measles vaccinations which are safe and have spared hundreds of millions of people from illness and death over the last six decades.

The worst part of this mess is that some portion of the American public is just plain stupid and willful. They rely on authority figures to tell them what’s best; if it doesn’t conflict with their beliefs they’ll seize it. The parents of the six-year-old who died of measles in Texas are a perfect example:

The Texas parents of an unvaccinated 6-year-old girl who died from measles Feb. 26 told the anti-vaccine organization Children’s Health Defense in a video released Monday that the experience did not convince them that vaccination against measles was necessary.

“She says they would still say ‘Don’t do the shots,’” an unidentified translator for the parents said. “They think it’s not as bad as the media is making it out to be.” …

“We would absolutely not take the MMR,” the mother said in English, referring to the measles-mumps-rubella vaccination children typically receive before attending school. She said her stance on vaccination has not changed after her daughter’s death.

“The measles wasn’t that bad. They got over it pretty quickly,” the mother said of her other four surviving children who were treated with castor oil and inhaled steroids and recovered. …

source: Texas Tribune

I’m only surprised these poor children received castor oil and not cod liver oil for vitamin A therapy.

These are the kind of people to whom RFK Jr. is a real risk. We can only expect more illnesses and deaths among those who take seriously RFK Jr’s practicing medicine without a license let alone adequate appropriate education and training.

~ ~ ~

How are we going to escape this stupidity? I don’t know, but you can protect yourself from some of the damage by making sure your vaccinations are up to date. Make sure your friends and family are up to date as well.

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As Disneyland Measles Outbreak Rages in California, Pakistani Father Arrested After Unvaccinated Son Contracts Polio

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There is very interesting news out of Pakistan today that the father of a child who has developed polio has been arrested because he refused to allow his son to be vaccinated:

After a polio case was detected here on Thur­sday, the Kohat administration arrested the father of the affected child because he had refused to get his child vaccinated against polio when vaccinators visited his home. Two health supervisors and a patwari have also been taken into custody for showing negligence in performing their duty.

Three-year-old Moham­mad is the second victim of polio in Dhodha area of Kohat district this year.

Deputy Commissioner of Kohat Riaz Khan Mehsud told Dawn on telephone that he issued orders for arrest after an inquiry revealed that the father of the affected child, Mullah Mohammad Yousuf, had not allowed vaccinators to give polio drops to his son.

But Yousuf is not the only parent who has been arrested:

He said 56 people had so far been arrested this year for refusing to get their children vaccinated against polio.

Also on Thursday, two men were arrested in Kohat for not allowing vaccinators to give polio drops to their children. They were identified as Amir Khan and Hassan Khan.

Islamic extremist groups in Pakistan agitate against polio vaccines, spreading conspiracy theories that the vaccines are Western attempts to kill or dominate Muslims. They even attack health workers and in 2014, those attacks killed more people administering vaccines than the disease itself killed.

But of course, in a civilized country like the United States, there couldn’t be misguided attempts to prevent vaccination despite the solid scientific basis of the public health benefits of vaccines, could there? Sadly, the mass delusion that has led far too many parents to leave their children unvaccinated due to unfounded fears of autism is having the very predictable result of outbreaks of viral diseases previously under control. Here’s the latest on the current outbreak of measles that epidemiologists have traced to Disneyland. Unfortunately, we are learning that because of the reckless behavior of not vaccinating children, even those who have been vaccinated are now developing the disease because of the increased exposure from the outbreak: Read more →

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